Saturday, September 26, 2009

Home Is Where The Heart Is

Leaving through the hospital doors with my arm around Lynnette was breath taking. Was I anxious to get home? I still don’t know. Shock is the word I might use. I could not believe I was going home.

Picture: (Top- Becki was one of the many nurses who cared for me. I loved each nurse who dealt with the old man in the kid's hospital.)

Primary Children’s Medical Center had become my home and family. Leaving them behind was an interesting emotion. Of course, patients continue to cycle through their care.

Whatever joyous celebration we experienced in my recovery, the nurses caring for me signed off their responsibility and went back to work caring for the many sick children still fighting for their future. And yet, there is not much public recognition for these quiet and faithful employees who bless so many lives.

After picking sweet Eden up from a cousin’s home we drove up our street noticing the many pink and red heart shaped balloons my sister Carol had placed all over our front yard on trees and bushes. I was proud to know our neighbors knew this was a great day in our lives.

Picture: (Middle- Barb Wright began caring for me in 1975. She has helped thousands of cardiac kids in the EKG lab at Primary Children's Medical Center)

Our neighbors had mowed the lawn and trimmed everything. They even picked the tomatoes they had planted in a garden they helped create many months ago. I had told Lynnette I was looking forward to eating those tomatoes not knowing if that would really happen.

I expected to be home shortly before Thanksgiving or Christmas. My anatomy and symptoms were beyond anyone’s true comprehension. And we planned for the worse while trusting in God and his ability to orchestrate the events of our lives.

We have a quiet home on a peaceful street. Walking through our front door and observing the blessings poured out upon us from all our hard work over the years was humbling. Peace permeates the small rooms and strength fills the walls. I attribute this to Lynnette and her divine nature. She's created something beautiful.

This has been our refuge. We've had many challenges and decisions to make therein which would effect our future. There will be roads to take, and mountains to climb in our future. Amidst our future joy, celebration, and happiness, we will face heart-ache, pain, and grief. However, I find great comfort in knowing the God of Heaven is a loving and kind Father who will help guide us as we seek Him out. I'm reminded of these words from Harold B. Lee, “The most important work you and I will ever do will be within the walls of our own home.” Our souls will stretch and our wisdom will increase from our experiences and we will be that much more prepared to strengthen others who are going through hard times.

And might I add, if you are not a religious person or doubtful of such strong statements I make about God I encourage you to cling to goodness and those who want to be good. Serve them and befriend them. They will lift you. They will buoy you up when life gets dark and challenging. It is through their goodness that you will feel the literal arms of God around you.

Picture: (Bottom Right- Back home with the family)

Spending a quiet evening at home with my daughter and Lynnette was something special and nostalgic. I think Eden went through 4-5 outfits until we were able to get her off to a ballet/tap dance class in her cute pink tutu. Of course, she kept touching my chest to feel my heart. And from time to time with a vulnerable sweet smile she’d ask, “Dad, hold my hand?”

And now more than ever I know home is where the heart is. And with tears of gratitude in my heart I know I’m home to stay.

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As much as I enjoy maintaining livingforeden.com there will be one more entry and a short video of our journey. Then this blog will be closed until after the holidays. I’ll be spending time with family, compiling my message into a book, and preparing for a long journey ahead advocating the growing needs and education of those living with congenital heart disease, as well as organ donation.

Please visit me at my music site and sign up for the newsletter or go through the various options of finding me on twitter, facebook, youtube, and other places. I would love to keep in touch.

47 comments:

  1. Wow! Amazing! You truly are a perfect example of Gods work and I love reading your blog, if you write a book I will stand in line to buy it. Miracles truly happen and you are one to speak of that. So glad your little girl and wife can finally have you home.

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  2. Wow! Amazing! You truly are a perfect example of Gods work and I love reading your blog, if you write a book I will stand in line to buy it. Miracles truly happen and you are one to speak of that. So glad your little girl and wife can finally have you home.

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  3. your wife truly is divine! so very happy for you guys to have some normalcy to your lives and for you to hold Edens hand...that brought tears to my eyes. love you so much!

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  4. Paul, We rejoice that this God breathed day has come. I hate the thought of this website not being updated regularly. I love being able to read the things you are learning as the journey you have been on has been such an inspiration to us all!
    My heart resonates with much of what you have written tonight. Tomorrow we go to a "heart walk" back in Charleston where my Evie had her surgery. We will have the privilege of meeting her physician and many of the Drs. and nurses who cared for her during our extended stay in PCICU. I know their lives have continued since the day we walked out the hospital doors 20 months ago....and yet, not a day goes by that I dont think of them and the way the Lord used their healing hands to give Evie a chance at life. Truly, instruments of the Lord!
    Enjoy your family....being home....and creating a lifetime of memories with your beautiful wife and precious daughter. Our prayers continue for you!
    Many blessings
    Mandy

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  5. Amazing to think you are home and have a new heart beating in your chest. What an incredible blessing. You will continue to be in my prayers. God bless!
    -Zaneta

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  6. Congratulations on taking your new heart home! Incredible.

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  7. Congrats on coming home, where you belong!! I am so happy that you and your family can focus on being a family now that you are blesses with a new heart. PLEASE update us on that every few months! Us bloggers not only care about your health, but your family and life experiences as well. I am SO HAPPY FOR YOU!!!

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  8. Welcome home, Paul! I loved the pic of Barb. I haven't seen her since I was a kid. WOW! Good to see she's still around in the EKG lab.

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  9. What a beautiful post. I think Eden just grew overnight in that photo.
    Thank you for letting us all witness this miracle through your blog.
    I will always hold you and your family close to my heart.

    Good luck with your book. I will be first in line to get a copy ;)

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  10. Welcome home, Paul. I'm so happy for you and your family. :)

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  11. Wow. It is just amazing how things have worked for you, after such a long road to get here. I am so happy for you!

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  12. Home is such a wonderful word! I feel it has been a blessing that I was able to come across your blog at this time in my life when I am looking for hope and inspiration in dealing with my own son who has a heart defect! Thank you for all of your beautiful words! I know you have touched many lives!

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  13. Paul, you look really healthy and strong! So happy for you. Best wishes for your life ahead, and we will see you in two years at OHS reunion.

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  14. Dear Paul,
    You are a true inspiration and your words speak such great depths! So glad you are home with your family. I stumbled upon your blog from another and have followed and said many prayers for you and your family. We live in Missouri and I have a daughter with a CHD, tetralogy of fallot, pulmonary atresia, ASD and VSD. She is 2 and has had 3 open hearts, 2 caths, 2 eye surgeries. She is amazing! I hope when she is grown, she will be able to have a wonderful attitude, like yours! May God bless you and your family! Stay well!

    Staci Budde
    www.caringbridge.org/visit/averibudde

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  15. Welcome home Paul, Welcome Home. May you continue to heal and enjoy your loved ones around you!!!

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  16. So glad you were able to come home, and earlier than expected. Miracles do happen! Surely our God is a God of mercy, as you and have yours have been blessed with so many tender mercies, and we, through you, have been blessed as well! I'm also glad you are going to take time off from the blogging world to spend time with those you love!

    My thoughts and prayers will continue with you!

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  17. "Home is where the heart is"... I love it!! Congrats on being home... what an absolutely wonderful feeling!! Paul, this is a true miracle to be out of the hospital so quickly.... you all deserve it! I will truly miss checking in on the blog to know how life is, so hurry up with the book! :) Lynette, your new haircut looks great! Enjoy the beginning of this new phase of the journey. We have considered it a privilege to call you both friends.

    Alli,Kyle, and Grant Hicken

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  18. It's true...the nurses at Primary are the best. It is bitter sweet to leave the hospital after if being home for so many months. But Home is wonderful!

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  19. You rock Paul. I love reading this blog, it's been great to hear your stories. I miss your wife dearly, she is an awesome woman. I'm proud to say "I knew her when..." Give her big hugs for me. That means you better post on your facebook more so I can keep up with how things go.
    Meg

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  20. "It is through their goodness that you will feel the literal arms of God around you."

    And so it has been with you.

    Thank you.

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  21. In awe of how quickly your recovery path is taking!!! Your family deserves all this "good" news! I too will iss reading up on your beautiful family....please know that we are ALWAYS thinking of you! May you continue to be blessed as your journey continues. Can't wait for the next concert!!!

    Easton and family

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  22. Paul -

    Thank you for sharing the miracle that is you and your family.

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  23. I think that all of your fans and readers prayed that this day would come for you and your family. I know I will miss reading your blog. You are a very inspirational man with so much to give.

    I too spent many hours at PCMC with my little angel Mia. Those nurses ARE amazing.

    I wish the best for you and your sweet family. Your wife must be incredibly strong and full of faith.

    All my best for you in the future. I'll be waiting and watching for more great music from you.

    Nicole Holland
    Kanab, Ut

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  24. Paul,
    I just wanted to tell you thank you for sharing your story with the world. I don't know you, but I feel as if I do. Your messages of God and of hope and of God's love for us have truely touched me. I spent some time in the hospital for Pneumonia, I was there for five days and I got to feel my Heavenly Fathers love for me. I am so grateful that He lets us experience things that are hard so that we can be humble enough to let His love touch our lives. You are an inspiration to me! Good luck with all that you do. And I cannot wait til your book comes out! I will be one of the first in line!!

    God bless you!

    Shaylyn Christiansen
    Saratoga Springs, UT

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  25. Congratulations!!! I am so glad that you are home with your beautiful family. I am so thankful for everything God has done in and with your life. Thank you for sharing your story with all of us. It gives us great hope.
    Faith Mahoney (mom to Maggie Jane HRHS)

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  26. Congratulations on coming home so quickly!!! I'm not sure i've ever left a comment but I have a 3 year old daughter with CHD and your story makes me realize my girl will grow to be as amazing as she is today!! Thank you.
    I am sad to see this blog go but I am sure you are ready to close this chapter and open a new one. Good luck with your recovery and enjoy some much needed time with your family!!!

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  27. What a beautiful post! Home is where the heart is that's for sure {no pun intended}..... and there your rocking chairs {behind you in the last picture} waiting for you and Lynette to grow old in them. :)

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  28. Congratulations once again! You look fantastic!

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  29. Rejoicing for joy and faith and secnd chances. Well done. You look amazing. We look forward to cheering you onward and upward.

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  30. Hello I am new to your blog, but I want to congratulate you on your progress and thank you for your testimony. About a month ago I saw you in a testimony meeting up at Primary's where my daughter, Eden, was being treated for a liver infection. I will be donating a portion of my liver to her next month as hers is failing due to a congenital defect. I hope and pray for the same faith in miracles that you have expressed in your blog.

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  31. Hello I am new to your blog, but I want to congratulate you on your progress and thank you for your testimony. About a month ago I saw you in a testimony meeting up at Primary's where my daughter, Eden, was being treated for a liver infection. I will be donating a portion of my liver to her next month as hers is failing due to a congenital defect. I hope and pray for the same faith in miracles that you have expressed in your blog.

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  32. hey, someone posted your blog on heartline.org.uk/forums (for chd parents)

    Im mummy to Ethan who has complex chd. just wanted to wish you all well and you write beautifully, your words are so inspiring.

    love the Lloyd family x

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  33. We are soooo happy for you! Enjoy this new time with your family! Thank you for inspiring all of the rest of us "heart" families out here.

    Summer, Mason's Mommy

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  34. You don't know me, but I have been following your blog. I am the mother of a 6 year old with Cogential Heart Disease and Autism. You have inspired me and helped me through so many rough times with your words of hope and love. What an inspiration you are! Thank you so much. We are so happy for you, and we wish you and your beautiful family all the best, you so deserve it.

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  35. Thank you Paul for you inspiration. With my wife Lyndee we have followed your progress since you started your blog. Seeing and understanding the medical problems that you have gone through and the fact you never give up, has taught me that anything is possible.

    Enjoy your time with your wife and daughter. God Bless

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  36. I will miss reading your posts but know that we will still follow your journey and will look forward to your return to blogging. Thank-you for sharing your journey and for bringing not only beautiful music into this world but simply hope.
    Heart hugs,
    Emily and Mike Gourley

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  37. I have been following your blog for some time now, and I have been so very inspired, touched and healed. My search for new, and different music to learn and play, led me to your music and your blog. I am in no way an 'artist', however, Heavenly Father has gifted me with the ability to play the piano...and with the sensitivity to feel the music I hear, and play. Thank you for the overwhelming testimony that has been validated within me whenever I listen to your CD's or yes, even when I play your compositions. Oh, to be able to compose with the Spirit as my guide. What an awesome gift you have. I will always look for new releases, and piano books from you.

    I pray you find even more joy and love spending time with your precious daughter and wife. May the Lord bless you and yours.

    Thank you for enlarging what our Father has blessed you with.

    cskelton

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  38. Paul, I've been following your blog and I am so glad you are going to write a book because you are a gifted writer as well as musician! I can't tell you how much reading about your experience has changed the way I look at things. What a blessing. You probably will truly never know the impact your words have had on so many of us. Thank you for sharing and please know how thrilled we are for you to now enjoy the everyday things of life in a new way! (Claire and Dan Kasteler)

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  39. Paul-
    I first met you about 10 years ago in Reno, as you came through (at the time) Family Tree Books. You signed some of your Hymn CDs for me, and I was always impressed with you. Ive since worn out those CDs and had to purchase new ones, repeatedly. Your music touched my soul, and helped me feel the love that the Lord has for me. The spirit is always present when I hear your wonderful music, and you have helped me feel that wonderful spirit when there were times I needed it most. I first heard of your transplant a few weeks ago, and I am so excited for you and your family! What a wonderful thing it is! In my line of work, we frequently have patients who undergo heart transplants, and there is no denying the incredible gift of organ donation. It literally changes lives. You inspire me so much, your music inspires me and my family, and we are so happy for you!

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  40. I have loved sharing this journey with you. I am so thankful that through your faith and prayers your Heavenly Father blessed you with this beautiful gift. I will continue to pray that your health and your strength will soon return. I am looking forward to your next concert and your new music that is waiting to come forth. Thank you to you and Lynette for sharing your special feelings and journey with us. Debbie Mitchell

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  41. Hey! I didn't quit on you! Why are you quitting on me? In other words, I will miss your blogging. A lot.

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  42. We are so excited that you are home! We brought our son home after his heart transplant almost 6 years ago. We will celebrate his "new hearts day" in October. I have so enjoyed reading your blog and keeping up with your family. I hope that my little son grows up to be strong in heart like you have been. There will be many lessons for him and us ahead I'm sure, and you have been a great example.
    In, your next adventure in donor awareness and congenital birth defects, please contact us if you need help. We have wanted to do the same kind of thing, but life has kept us to busy. Again, Congratulations!

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  43. Paul I am sooo please that you are home already! I wish I could bless you and your family also as you have blessed my family! The Lord is faithful and righteous and I know that you along with my lil Melanie are miracles from Heaven!

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  44. Pul and Lynnette,
    I saw you on the news and I just cried. I cannot believe you're home. May your life and journey be so enriched. And thank goodness Eden is so young and will continue to grow and hold her dad's hand!

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  45. Thank you for your heartfelt blog! Thank you for being the miracle that is you. I'm thrilled for you that this has all worked out so well and you are HOME - the sweetest place to be! Best of luck to you and your family. I look forward to hearing more great things about you in the future.

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  46. Paul: what happened to the two videos that were here? I came back to watch them and they're gone. I am still praying faithfully for you!

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