My tune Gracie's Theme, inspired by baby Gracie Gledhill and all the other children with CHD, is going to be on an album that Shadow Mountain Records will release sometime in the Fall on my behalf. It combines 15 songs from my 15 years recording music.Hopefully, this will bring a little more attention to those who are deeply affected by heart conditions. I know mine has richly blessed my life in an bitter-sweet way.
Good Luck with this endeavor...Your music and your life are so inspirational!!
ReplyDeleteOh this is so neat that you are wanting to compile pics of CHD patients. My brother passed away last year suddenly of a congenital heart defect. He was just 23, and we were not aware of the condition until after he passed. I would love to send you a picture of him. He was great on so many levels; outgoing, loved making people laugh, was an adrenaline junkie, and so full of life. He always wanted to be "famous" and be in movies or on tv someday. He was on tv for just a few minutes 12 days before he passed away. But this music video idea is great! I hope you'll consider his pics :) You are such an inspiration. God bless you!
ReplyDeleteI sent you a couple pics of Jax, thanks for spreading the word. I can't wait until the CD comes out so I can get it. Hope your continuing to feel pretty good.
ReplyDeleteI can't wait to see that you tube video. Always looking for something to post on Roman's blog and share with others out there to give them hope about children with CHD. I met a childrens cardiologist this week while we were vacationing and he couldn't believe that we had been told to abort our child. Thank you for continuing to share your story with us.
ReplyDeletePaul,
ReplyDeleteI think it is wonderful that you are helping SO many. I just stubbled on your blog and I have to say your a true inspirtation and strength for myself.
My name is Lauren and I'm 21. I was born with Tricuspid Atresia aka HRHS and have had 2 open heart surgeries along with many other things. I have not gone through as much as you though. You give me strength, it is a hard road sometimes living with a CHD, but it has been a blessed one too.
I wish I had known about your video, I would have e-mailed you a picture of me. I'm sure it will be beautiful. CHD Awareness needs to be spread.
Your in my prayers as well as your family. Stay Strong and Keep Smiling. God is sure with you!
From one Mended Heart to Another,
Lauren
Blog: www.laurensheart.blogspot.com
Hello Paul,
ReplyDeleteI just came across your blog and am completely moved! I am a Mother to a 2year old CHD boy, Trevor. He has had two open heart surgeries (his first was 2 years ago today and the second was just 7 weeks ago) and several caths. I am in the beginning process of a planning benefit concert with Christian Artists for CHD awareness and research. I would love to include you if you are up for it. I think you are truly inspirational and will be praying for you!
Sarah, Heart Mom to Trevor
www.TrevorsAllstars.com
Paul, thank you for always sharing such positive, inspirational thoughts on your blog! You and your family are in our prayers. I think your video will be a wonderful way to spread awareness about CHD. Is it too late to get you a picture of Miracle Mason?
ReplyDeleteThanks again for spreading HOPE!!!
Love, Summer, Mason's Mommy
(sumstrick@gmail.com)
Paul, As always, your wonderful spirit is reaching out to include everyone. Beautiful! Wow, look at the matching daddy/daughter chins in your June 4 post photo of you and Eden. Priceless!
ReplyDeleteI sent the picture to Carolyn of IHH but I did not get the reply to send it to your e-mail till this morning. We would love to be included. I sent an e-mail and hopefully you will be able to get it in time.
ReplyDeleteThank-you!
Emily Gourley
A friend just sent me a link to your blog. My son is 7 years old and has CHD. He has had three cardiac surgeries, as well as other surgeries.
ReplyDeleteWhat an inspirational blog. As I am dealing daily with trying to understand all that is wrong with my sweet son and helping him to understand his own body and how to live wonderfully with it, what a great new tool I have thru your blog.
Your words were just what I needed to hear this morning. Thank you for your inspirational testimony.
Are you still accepting pictures of CHD kiddos for the video? If so could I email you some of my daughter Zoe? She had her Fontan last year and thankfully is doing wonderfully, but I would love to help in any way I can to spread the word about CHD.
ReplyDeleteLet me know - you can email me at:
lellenn@gmail.com and let me know if I can still participate.
Thanks!
Laurel Nelson
Heart mom!