Wednesday, January 26, 2011

Primary Children's patients ‘Movin' On Up' - ksl.com

Primary Children's patients ‘Movin' On Up'
January 26th, 2011 @ 10:18pm
By Ed Yeates

SALT LAKE CITY -- Children with life-long medical conditions need mom and dad's support to help keep them alive, but what happens when the parents aren't around anymore?

Video Courtesy of KSL.com


Primary Children's Medical Center has launched a new program that's actually helping kids sever those ties -- for good reason!

Two brothers, Ethan and Devon Galland, are "Movin' On Up." That's the name of the project to help them make the transition away from mom and dad so they can take care of their own medical conditions.

Six years ago, Ethan got a donated kidney from his dad. The year before, Devon got a kidney transplant from his mom. While both were born with the same congenital disease, it's rare each parent was able to donate a kidney to each child.

Read More Primary Children's patients ‘Movin' On Up' - ksl.com

Tuesday, January 18, 2011

Lessons Learned

I'm continuing to learn beautiful things from the dying who believe in God. These humble people, who have had no choice but to become reliant on the help of others, have a tender innocence that only comes to those who recognize this life is not all there is. These who walk the paths of suffering find strength within to adapt to their circumstances because they know life exists beyond the grave.

For myself, I came to know this truth in my own journey, which for me has become nothing more than a grand gift from a loving Father in Heaven. Through it all He taught me valuable lessons that can only be understood by those who seek to know His will for them.

Less than a week ago I visited a good friend of mine in the intensive care unit. Holly has been denied a heart transplant by various clinics across America because of additional complications associated with other issues in her body. She does not have long.

Photo: Holly & Quintin McKell
Visit Holly's CareBridge Page


Living with severe heart failure, Holly's body swells up with fluid and at times she looks 8 months pregnant. Doctors ordered a test to help relieve her of some of the bodily fluid. According to her family, as Holly was talking and laughing with nurses and doctors about her time in Australia with her husband her heart stopped for several minutes. Apparently, she died for several minutes until medical personal worked a miracle that put her into a temporary coma. She later woke up with some memory loss and confusion.

I entered Holly's room to see her smiling. There was a special feeling of love in the room as though unseen relatives from beyond the grave crowded her bedside. She was also surrounded by her living family including her loyal husband, parents, and two sisters. They are extremely supportive.

Photo: Spending time with Holly

Holly is teaching us important principles.

First, this is a beautiful woman who always smiles. Even if she tries to get mad she can't do it without smiling. It's almost contagious. She is quite obviously suffering from the various needles and procedures. Yet she can't seem to wipe that smile off her face. Smiling is a cure for the contentious spirit of selfish behavior. An optimistic glance from another human being makes those they come in contact feel valuable.

Secondly, this is a woman who knows and trusts her Heavenly Father, the Creator of this world. She has faith. Often we question God and wonder why this and why that? However, at this stage in Holly's life she is completely submissive to the Creator's will for her future.

Overall, this remarkable person has found comfort and strength amidst what the world would view as the end. This is where the world is wrong! Life is not the end and the smile on Holly's face and the light in her eyes reflect this truth.
______________________

When my wife and I first moved into our ward or local congregation I remember attending the various meetings with a gentleman who was assigned to conduct the church hymns. Often he performed with a male quartet singing "Brightly Beams." As a fellow musician we've been friends and have had many conversations on music. Over the years he's dealt with cancer, the destructive enemy of the body. He knows the meaning of the word pain.

Weeks ago our neighborhood learned this kind man without guile is dying of end-stage cancer. He told me, "I'm fine. It's those around me that I worry about." Where does a man acquire such faith and peace? I believe it comes from years of loyalty to living principles of loving others unconditionally, sharing his time and talents to benefit others, and dedication to helping people.

Whenever I sing "Brightly Beams" I will think of my fellow musician friend who continues to spend his time helping others.

Brightly beams our Father’s mercy
From his lighthouse evermore,
But to us he gives the keeping
Of the lights along the shore.

Let the lower lights be burning;
Send a gleam across the wave.
Some poor fainting, struggling seaman
You may rescue, you may save.

Monday, January 10, 2011

SLCC Full Ride Scholarship DUE March 1, 2011

APPLY TODAY

The Paul Cardall Scholarship for Students Affected by Congenital Disorders was established in 2010 by SLCC alumnus Paul Cardall, who was born with a complex congenital heart defect and received a heart transplant on 09-09-09. The costs associated with a chronic illness are understandably high. The Paul Cardall Family Foundation wishes to help those who have been affected by congenital disorders (congenital heart disease, spina bifida, Down syndrome, fetal alcohol syndrome, cystic fibrosis and other birth defects) to obtain an education at SLCC.

This scholarship is available to residents of the Rocky Mountain Region who have been diagnosed with congenital disorders, or whose children have been diagnosed with congenital disorders. Applicants must demonstrate financial need and be degree or certificate-seeking students at Salt Lake Community College, and enroll in at least 9 credit hours, but not more than 18 credit hours, in an eligible program. Successful applicants will have demonstrated courage and character in their response to the challenge of congenital disorders.

This $3,000 scholarship ($1,500 per semester) may be used for tuition, fees and books. The scholarship will be awarded in spring 2011 for the 2011-12 academic years.

APPLY TODAY:
http://www.slcc.edu/financialaid/scholarships/11-12_Paul_Cardall_application_Congenital_2011_12.pdf

Saturday, January 8, 2011

A New Life and a New Album

I handed a copy of my new piano album, that doesn’t hit the stores until Valentines Day, to my 91-year-old grandmother. She has a sophisticated ear and enjoys quality music. I have great love and respect for her opinion. If she’s pleased I feel a greater sense of confidence in letting the public have my art.

When I handed the disc of new music to Grandma she had no song titles or additional information about the project. I didn’t’ even have a title.

Yesterday, after a month of listening to the master copy she said, “The pieces are about your recovery, aren’t they?” She could feel the instrumental music and it spoke the message without words to her heart. I said, “Yes, it’s about the emotions I’ve experienced after the miracle of God and trying to comprehend all of the irony associated with my survival.

How does a composer create music after going through a rather unusual ordeal of life and death? I was deeply worried about this and a cause for some stress.

Although I performed and spoke in many cities, it wasn’t until a year after the transplant that I entered a recording studio for the first time.

Having met so many wonderful people experiencing similar health challenges or enduring overwhelming obstacles, ideas or themes flooded my soul and I was finally able to transfer emotions of grief, sadness, joy, gratitude, and humility, into a collection of more than 10 powerful piano compositions accompanied by tender orchestrations.

Photo: My daughter Eden visiting me in studio during the New Life project

New Life is the album. February 14th is the release date. Not only is this a deeply personal album, but also I believe it will be very healing to listeners in search of greater peace and spiritual strength in their own lives.

I am anxious to perform this new music with a small orchestra at my 2nd annual celebrate life concert on Valentines Day. I look forward to having those of you in the Salt Lake City area join us for this unique show.

For more information
http://www.paulcardall.com