What an amazing, inspriational and talented person you are. I would love to get in touch with you as I am the President of Intermountain Healing Hearts, which is a newly formed non-profit support group one year) that offers support locally to those affected by Congenital Heart Defects. We also have adult members and I am sure you would add so much to the group and offer much hope to parents that are in shock that are wondering what the future will hold for their newborn that has just been diagnosed with a chd(s). I invite you to visit the site at www.intermountainhealinghearts.org.
I have been inspired by your music for sometime and just heard about your blog and article with the Deseret News. My son Joseph had a heart transplant in January because he also had congenital heart defects and PLE. He had struggled with much of the same (hating steroids and their awful side effects, swelling everywhere, especially in his abdomen-he looked like he was 8 months pregnant before transplant). Hopefully you will receive your transplant soon so that you can resume your normal life. It really does happen - it just takes a while. We will be praying for you. You can read Joseph's blog at heartransplant.blogspot.com. Wendy Talbert
It was a very nice article. You're music is beautiful! My name is Camille and my son Alex, (born 5-12-08) has the same CHD as you do. It's so nice to see that children with CHD's do have a future. Thank Heaven for modern medicine, and for the tender mercies of our Heavenly Father. I wish you the very best in your waiting. I hope that you can visit the website (intermountainhealinghearts.org), because I really believe you can offer a lot of support and hope to those of us who are experiencing what you already have. Best of luck to you and your beautiful family.
I loved the article! I think about you guys all the time, your such inspirational people! Love you guys!
ReplyDeleteIt was a great article...we are grateful for the internet so we could read it!
ReplyDeleteWhat an amazing, inspriational and talented person you are. I would love to get in touch with you as I am the President of Intermountain Healing Hearts, which is a newly formed non-profit support group one year) that offers support locally to those affected by Congenital Heart Defects. We also have adult members and I am sure you would add so much to the group and offer much hope to parents that are in shock that are wondering what the future will hold for their newborn that has just been diagnosed with a chd(s).
ReplyDeleteI invite you to visit the site at www.intermountainhealinghearts.org.
Heart Hugs,
Carolyn Quigley
President, Intermountain Healing Hearts
www.picturetrail.com/Littlemisshope
(our daughter's journey with CHD's)
I have been inspired by your music for sometime and just heard about your blog and article with the Deseret News. My son Joseph had a heart transplant in January because he also had congenital heart defects and PLE. He had struggled with much of the same (hating steroids and their awful side effects, swelling everywhere, especially in his abdomen-he looked like he was 8 months pregnant before transplant). Hopefully you will receive your transplant soon so that you can resume your normal life. It really does happen - it just takes a while. We will be praying for you. You can read Joseph's blog at heartransplant.blogspot.com.
ReplyDeleteWendy Talbert
It was a very nice article. You're music is beautiful! My name is Camille and my son Alex, (born 5-12-08) has the same CHD as you do. It's so nice to see that children with CHD's do have a future. Thank Heaven for modern medicine, and for the tender mercies of our Heavenly Father. I wish you the very best in your waiting. I hope that you can visit the website (intermountainhealinghearts.org), because I really believe you can offer a lot of support and hope to those of us who are experiencing what you already have. Best of luck to you and your beautiful family.
ReplyDeletei cant get on your family blog....can you send me an invite?
ReplyDeleteGreat article! And the album is stunning. You do amazing work. Keep on keeping on!
ReplyDelete